There is not enough awareness about many rare illnesses, even though there are an estimated 350 million rare disease patients worldwide! This infographic from Global Genes provides many facts about rare disease as a whole. #CareAboutRare
World Rare Disease Day 2017 is February 28th! Personally, I have 4 rare conditions. Let’s get the conversation started and spread the word!
I finally made the move to a new cardiologist, and it was a much needed breath of fresh air! While it’s going to be frustrating, almost completely starting over on my diagnosis journey, I’m very hopeful and excited. Here’s hoping we can find some much-needed answers!
My February appointment with the dietitian was quite productive. The low FODMAP diet didn’t work, so we are now switching things up! It’s going to be a monumental task, but it should help dramatically.
I love holidays, all holidays! Valentine’s Day has always been a day of all-inclusive love, not just romantic love, for me. I’m taking the time to acknowledge my loves this Valentine’s Day.
This post has the rest of my progress pictures from the KmS Clear Skin Makeup Challenge! It’s also my final review about the products and process.
My physiatrist and I decided that going forward with a cortisone injection into my right SI joint was the best next step. It’s been an intense week since the shot, but I’m happy to report it’s been worth it!
This was likely my last full week on the low FODMAP diet, as I see the dietitian again on February 7th. Sadly, the diet hasn’t really helped my symptoms. See more details and my Week 5 food log here!
My specialist immunology appointment was Monday, January 23rd. In summary, I got the referral due to confusing allergy shots complications. I was thinking I probably had MCAS, my gastroenterologist suspects I may have eosinophilia of the small bowel, and I really just want to know what’s going on and why I’m so itchy all the time.
Weeks 3&4 of my low FODMAP diet have been quite hectic, which is why I decided to combine them into one post!