My name is Elizabeth Bulfer. I’m 26 years old, and I’m a spoonie.
What’s a spoonie you ask? Well, a spoonie is anyone that is suffering from a chronic illness that limits the sufferer’s daily energy levels. The name comes from the amazing Spoon Theory, by Christine Miserandino. The Spoon Theory explains chronic illness so well that it has become a sort of bible for chronic illness sufferers.
I suffer from several chronic illnesses, some of which I’ve had for a long time, some that I wasn’t diagnosed with until I was in my 20’s but have had for a long time, and some that didn’t develop until I was in my 20’s. I’ll explain my illnesses in more depth in my first posts, but here is the list: asthma, allergies, eosinophilic esophagitis, fibromyalgia, postural orthostatic tachycardia syndrome, irritable bowel syndrome, attention deficit hyperactivity disorder, depression, insomnia, migraines, temporal mandibular joint dysfunction,
lactose intolerance/sensitivity (discovered this wasn’t the case 10/2015), plantar fasciitis, joint hypermobility syndrome, and inappropriate sinus tachycardia.
My husband, Dan, and I live in Colorado now, but we’re both from different states originally. Dan is originally from Wyoming and I’m originally from California. He is a year older than me, and we met when I came out to Colorado to attend college. I ended up joining a club that he was an officer in, and we hit it off pretty quickly. We got married June 14, 2013, on the best day of my life and our 4.5 year dating anniversary. By our wedding day, we’d already dealt with more than our share of illness and drama. Our relationship is the one thing I can always count on in life, and it helps make everything else a little easier to deal with.
I decided to start this blog to spread awareness for my illnesses, provide information about the illnesses, and to hopefully help other chronic illness sufferers get through the darkness and confusion that comes with a new diagnosis. When I was initially diagnosed with my first rare chronic condition, I felt as though I was the only person in the world that had it; which is a feeling I am hoping my blog can help other newly diagnosed patients deal with.
Please check out my Invisible Illnesses board on Pinterest for even more information (and some chuckles) about my conditions.