As I’ve gotten sicker, Dan has needed to take on more as my caretaker (and husband). Many people have expressed curiosity about our relationship, and I figured there was no better way to show it than to detail an “average” day!
I’ve concluded I need a reusable respirator mask that I’ll wear more often… but I cannot decide which one I would like to order. I have narrowed it down to three, but now I need YOUR help! Which one is your favorite?
Lately, I’ve been on some sort of autopilot. I thought it was due to some sort of medical burnout, until I was taking a closer look at my blog archive and realized when my post frequency dropped off…
It's now officially fall! Yesterday was the autumnal equinox, which marks the first official day of fall here in the northern hemisphere. One of my friends, CL, shared an interesting article on her Facebook about why fall is the only season that has two names (one thing I know I have personally wondered about many… Continue reading Happy Fall Ya’ll
I have decided to do genetic testing for Ehler-Danlos Syndrome, even though I know that EDS Type 3 (Hypermobility Type) doesn’t have a genetic marker. However, when I look at the list of typical symptoms for classic EDS, I have a lot of those too, so I want to be sure I don’t have that one.…… Continue reading Genetic Testing
When I was trying to determine what "severe diarrhea" was defined as, medically, I couldn't find anything. Seeing as how I have suffered from the exact opposite problem my whole life, I don't exactly have a reference point. The Linzess says to stop taking it and contact your doctor if you have severe diarrhea. It's… Continue reading Day 3 of Digestive Distress and I am so Far Out of My Element – Please Help!
Official Uniform of the Dysautonomia Warrior T-shirt by FindingTheSilverSun Make your own custom t shirts online at Zazzle I found a pretty and comfortable looking tee shirt! (It says it's made out of very soft materials.) I'm thinking it'll probably be great for lounging around the house in the summer. What kinds of merchandise… Continue reading “Official Uniform of the Dysautonomia Warrior” – another shirt and two questions
Ya’ll know I’m trying to make money from home (posts 1, 2, 3; pages 1, 2) to help with my own medical bills, upcoming student loan repayments, and the car payments we’ll need to make soon thanks to both our cars being really old. I am quickly realizing there is a small flaw in my plan:…… Continue reading My Social Circles Aren’t That Good For Marketing
Today was my Reformer for Recovery Pilates class. We started by doing a few gentle squats. When I say a few, I mean three or four. Gentle means a very shallow squat, just as far as is comfortable, and no added weight at all. I did one just fine. Then every single other one had…… Continue reading I Need Some Research Help – Possible New Muscular Symptom
I'd like some feedback about my dysautonomia design for Zazzle. I want to make more products, and I'd like to make some more designs. I'd also like to make some for general chronic/rare illnesses and fibro. I'm not super fantastic at designing, but I'd like to get better, so practice is necessary! Can you tell… Continue reading I Need Feedback on Dysautonomia Zazzle Designs!