I started the diet on Tuesday, the 28th; starting phase 1/2 as directed by my dietitian. However, since starting, I have felt horrendously ill. I’m not sure why exactly that is, and there are many potential reasons…
Some of my LEAP results weren’t surprising, some were extremely surprising, and some were plain ol’ disappointing. However, this diet should really help my overall health! For details, read the full post.
First of all, it’s extremely difficult to determine if you’re actually sick, because colds, the flu, and infections tend to mimic the symptoms of the chronic illnesses… differentiating between a cold and a flare can be extremely difficult. (I go more in depth about this problem here.) I realized I was sick this time because I…… Continue reading Being “Normal” Sick While Chronically Ill
*Sponsored Review* I was asked to try out the Asthma Storylines application for health tracking, and give an honest review. Honestly, I loved it! It’s the most comprehensive tracker I’ve used. Keep reading for my pros and cons.
With my appointment fast approaching to get my LEAP results, Dan and I decided to make some “guesses” as to which foods will be “no good!” It will be really interesting to see which of these predictions end up coming true!
For World Rare Disease Day 2017, I decided to share a glimpse into some of the rare disease aspects of my life using my social media accounts. Here is a roundup of all the social media posts I did in honor of WRDD! (And links to find more posts that aren’t mine.)
There is not enough awareness about many rare illnesses, even though there are an estimated 350 million rare disease patients worldwide! This infographic from Global Genes provides many facts about rare disease as a whole. #CareAboutRare
World Rare Disease Day 2017 is February 28th! Personally, I have 4 rare conditions. Let’s get the conversation started and spread the word!
I finally made the move to a new cardiologist, and it was a much needed breath of fresh air! While it’s going to be frustrating, almost completely starting over on my diagnosis journey, I’m very hopeful and excited. Here’s hoping we can find some much-needed answers!
My February appointment with the dietitian was quite productive. The low FODMAP diet didn’t work, so we are now switching things up! It’s going to be a monumental task, but it should help dramatically.